I slept the clock around last night. I'd gone to bed at 1am on Sunday night and got up at 5:30 and was clearly shattered by the end of the day as I fell asleep at about 10pm and woke up at around 10am, feeling much better, though from there I've become progressively fed up, grumpy and down. I suppose it's just one of those days.
Mum was released from the Day Surgery Unit at around 2 or 3pm yesterday feeling "as if [she] could run a mile". I suppose that's uber hospital drugs for you. The doctor took several samples of the tumour and while he was there he cleared out a bunch of gunk (mostly pus as I understand it) from mum's sinuses, so she feels much less congested at least, though it hasn't helped with any of the major tumour symptoms (the numbness and muscle weakness in her face, eye, nose, mouth; difficulty eating; deafness in one ear; shaking [a newish symptom] etc), it has slowed the perma-nosebleed to almost nothing, which I think is a great relief to us. Mr Tesco delivered some supplies with the groceries (namely micropore and gauze) so if it starts again we can rig up our own nose sling
in imitation of the one they rigged up for mum yesterday at the hospital.
Results of the biopsy are due Thursday and my aunt (who has worked at St Georges and still volunteers there) told me yesterday that she was arranging everything. She's scouted out the best dropping off place, is arranging for a wheelchair to meet us there in case mum's unsteady on her feet (she's needed a wheelchair the last two times we've been to hospital) and tracked down the medical receptionist/admin type person who deals with the specific clinic and they're making sure that everything that is needed is there as a favour to my aunt. I guess knowing someone really can make a difference, and let's be frank - having a medical receptionist/secretary/admin person on your side can make a real difference.
While mum was feeling good I managed to have a couple of conversations with her about stuff that needed to be done, people to see and phone calls to make. It was apparently the perfect time as she felt like listening and was also feeling pessmistic about her prognosis, which while not ideal, meant that she gave some of my ideas the thought they at least deserved.
Got a response from Careline (attached to Diabetes UK) today, who I contacted yesterday with a panicked enquiry about the stupid diabetic nurse
s' comments that all weight loss was good when it came to type 2. Careline basically agreed with Macmillan
(and directed me to them) about how uncontrolled, cancer related weight loss is bad and mum should see about getting referred to a proper, specialist dietician as a priority. It's been added to a list of things to ask her GP about when she next sees him (along with asking for different/better anti-emetics as the ones she has don't seem to work well and make her very sleepy). Take that stupid diabetes nurse!
As I mentioned I seem to have spent a good deal of this afternoon getting wound up with various things and increasingly fed up. Not entirely sure why everything is getting to me today, but it's not helpful. At one point I had a long list of things I was annoyed and fed up about. Thankfully reeling the list off to benc
over the phone and a lesser list to red_pill
in person helped a little.
Pondering going home (Canterbury) on Thursday night, but it all depends on what happens on Thursday's ENT appointment. I'm finding it difficult to see past that at the moment, which I suppose (looking at it objectively) isn't helping my mood much.
Phil's first driving lesson tomorrow, which is rather scary. Coulsdon and Wallington, you have been warned. Stay off the roads :P
ETA: 12/07/11 No longer filtered