Not updated this for a few days (a week?), owing to being very busy indeed. Ben arrived on Wednesday night and took me out to dinner (and was generally fabulous the entire time he was here), and we spent most of Thursday and Friday sorting stuff out for mum's birthday, doing various errands and helping mum celebrate her birthday, before getting back to Canterbury late on Friday night for the rest of our weekend. Mum had a passable few days that week, though had a huge headache on Friday night that necessitated calling the doctor for some stronger painkillers than she had been taking (uber co-codamol, as the Tramadol the hospital gave her makes her feel sick). The headache thing worried me a bit as it brought to the forefront of my mind my worries about what a highly aggressive tumour (the drs at the hospital said it was because of the speed it had caused symptoms and degeneration in function in her face, though as of yet, we still don't know what it is) has been doing in the weeks between the first diagnosis of a tumour and now. I keep worrying that the gap between then and now will mean that a treatable tumour will have become terminal in the meantime. Which is silly, because I'm worrying about things that a) I have no control over and b) haven't even come to pass yet.
The MRI is scheduled for today at 12:15 and I'm hoping I can get mum to the hospital and back without her being sick. Attacks of sickness and nausea are becoming more frequent and I think they may be related to the tumour(s). Of all the symptoms mum has, this is the one I struggle with most. I hate vomit. It makes me want to vomit. Yesterday mum was sick several times and it took me 10 mins and nearly losing the contents of my own stomach 5 or 6 times before I got it from the bowl into the loo. It was ok so long as I wasn't looking at it. No nausea or retching as long as I had my eyes shut or it in a different room, but it's hardly a valid strategy for anything other than getting vomit over the floor between the living room and downstairs loo. Once the bowl was cleared of vomit it was fine - no retching or anything while I cleaned it out with water and then dettol'd it. I know there's probably a good deal more vomit in my future and it's one of the things that worries me a lot. Rather pathetic I know. In the great scheme of things it's not really that bad, but I really can't deal with it. I assume that I will get better at dealing with it. I hope I do, for mum's sake anyway.
Mum saw the diabetic nurse yesterday for a routine review and asked some questions I'd asked her to ask and it seems that the diabetic nurse was about as much use as a chocolate teapot. Mum was diagnosed with type 2 just before the symptoms of the tumour became apparent, so the treatment of the type 2 features in the complicated mess of trying to get some calories in to mum. I've probably mentioned before that the tumour on her cheekbone makes it hard for her to eat, especially anything hard, and makes eating extremely slow and hard work. On top of this, which makes her disinclined to eat, is the nausea and vomiting, which makes it extremely difficult to tempt her appetite. She's losing a lot of weight, which I suppose is good from the type 2 diabetes POV but I don't think she's losing it in the right way. She's barely eating, sometimes not keeping down what she does eat and so it's just melting off her. I'm worried that she won't have the energy to deal with whatever treatment she has for the cancer and that she will get malnourished. Sometimes when she's been sick the only thing she feels like eating(or that she can eat) is something that is bad from a diabetes POV like carrot cake, which then gives her the energy to eat something better for her. The only fruit she can manage is raspberries, grapes and blueberries. It's not really ideal.
The diabetic nurse said that if that was all she could manage (the carrot cake type thing) then she should eat that, but it was better if she could manage something like soup and bread. Which is what we were doing, but I feel as much in the dark as to how to deal with mum's nutrition problems as I did before, and I'm angry and upset about that. I got more help from my Auntie Pat (type 2 for years and years) who said that mum was eating so little the sugars issue didn't really feature too high and I should just get calories in to her where and when I could. Really I shouldn't be getting more helpful and less wishy washy advice from my aunt, who is not a medical professional than from a nurse with a speciality in that area.
Gah, it's all so complicated :(
ETA: 12/07/11 No longer filtered